Butterfly Sparks Designs

Friday, August 28, 2009

Pink Boomer Luncheon - September 17th



Just wanted to give my friends an update - the Pink Boomer Luncheon is almost sold out! If you are thinking about joining Pastor Debbie and our women's ministry team for this fun time, please register immediately. We are expecting to close down registration by Monday - we're running out of space!

Just visit pink.gatewaypeople.com and click on the link at the bottom to register. Can't wait to see you there!
Much love,
Jan



Friday morning greetings!

Hi friends,

Thanks so much for all the additional prayer support over the past few days. I feel like some of the weight has lifted off my mind and I'm beginning to rise up again. I had a great visit with my doctor on Wednesday. We talked a lot about my visit with the surgeon and some concerns I had. He is really an amazing man. Both brilliant and compassionate.


We went ahead and scheduled my scans immediately. Yesterday I had a CT on my hip and another MRI on my breast. I'm also scheduled for an echo cardiogram just to be sure my heart is tolerating the chemo drugs without damage. I'll know a lot more about both the progress we are making and what comes next by next Wednesday. He really encouraged me to drink a lot more water as the reason I'm getting urinary tract infections is because one of the chemo drugs tends to settle in the bladder. More water, more water!







I already told you how much I enjoyed blessing box #3 - but I have to show you a picture. It was another beautiful display of love and support. I have all three boxes displayed on a shelving unit in my home and they really make a beautiful display. I can just open one at anytime and grab hold of a truth or an encouragement. Thanks again to Julie and the lovely ladies who have loved on me over and over! I am blessed.




When I got home last night, I had some beautiful flowers. Thanks Chelsea! They are gorgeous. I hear you sent me flowers on your birthday. Somethings not right about that. I think I should have been sending you flowers.
















Last night I was able to attend John's first high school football game. On Thursday's they wear a cool "game day" polo for school. We snapped his photo on the way out the door at 7 am - so he doesn't look so happy. Jaguars won last night 19 to 0! Go Flower Mound.










I'm still feeling well this morning. Just cleaned my kitchen, ran some laundry, made my bed and sending you a note. Hoping and praying for an easy time - but either way - committed to going through.


Here's a verse I'm meditating on this morning. Heb . 10:35 - Therefore, do not cast away your confidence, which has great reward. I'm believing for a great reward and therefore, I'm standing resolute in the face of disease.


Love you and thank you again!

Jan

Wednesday, August 26, 2009

Chemo Round #4 - Strength for the battle!

Good morning,

Its 5:45 am and I've been up for awhile. Today is chemo round #4 and I have mixed feelings. A part of me dreads the day and weekend (only natural, I guess) and the other part of me rejoices to go on through. I have to remind myself that each treatment is like a rung on the ladder. At least I have some sense of forward motion and a movement toward the destination.


When I got up this morning I just knew I couldn't wait to open my third blessing box. Julie brought it to me yesterday and prayed over me. I have just read every note, verse and gift. I feel like I'm drinking in an early morning boost of strength. Thanks again to you amazing ladies. Each box has held a unique vibe and come at exactly the right moment. I am so blessed. I will carry you with me today and through the weekend and look forward to the day I can say thanks face to face.


Not only am I in for treatment this morning, but my mom, Marilyn has cataract surgery this morning. Thanks again to LC for taking her on my behalf. I'm confident she'll do well, but would you please agree with me again? Her procedure is at about 9:00 this morning and should last about 30 minutes.


Talked to my mom in law Molly yesterday who said she had experienced about 4 good days in a row. That's encouraging. Wondering if the new medication may be making an impact? Prayer point again.


My schedule has become challenging - probably just like you. It was a real relief to get the boys and Ashley back in school this week. I made one more late night run last night for school supplies while Mark took Matthew to football practice again. John and Matt have their first football games this weekend and Luke starts next week. I think I'll have to miss Matt's on Saturday - so I'm kind of bummed about that. But there are lots of games and I'm making to make as many as I can. Everyone, including Ashley, seems satisfied with schedules and teachers.


Ashley's been working SWAT (freshman orientation) at DBU. She seems to have loved it! Please pray for her too as her fall schedule is demanding with work and school and leadership opportunities. Would you mind praying with us for favor with the financial aid department? Her paper work didn't get processed until this week and we're really entering the semester on financial faith. We've submitted a request for some special consideration due to circumstances but are waiting.


I don't want to forget to let you know how much we've appreciated all the food that has continued to roll into our home. So many amazing meals! Thanks Lynnell, Paula, Angie, Lanae, Colleen, Tina, Christy, Paula, Lorena - I hope I didn't forget anyone because I assure you they didn't forget us. Our refrigerator is always full and our love tank, too! Thank you so much.


I realize I've been sporadic in my writing the last few weeks - I hope I haven't lost you or overly concerned you. I am distracted in many ways and grateful for your continued prayer. I am definitely into a battle for my mind and emotions. I am not unstable, but under constant barrage. Each day I arise and ask God to do battle with me and for me. My progress feels suspended and threatened. This ground is more rocky and uphill. I am praying for hinds feet to go on and up with God.


After 6:00 am - time to rally the troops and face the day. May the Lord lift you up, make His presence known to you and give us all strength for the battle.


I love you,

Jan

Tuesday, August 18, 2009

Greetings from the sidelines!

Hi team,

I'm posting an update from my phone while sitting on the sidelines of Matthew's football scrimage. I've been wanting to post an update for days but find that having time in the evening at the computer is challenging. All 3 boys are practicing for fall football and our nights from 5 to 8 are no longer our own. Not complaining. I love it. Just explaining.

In addition I've been working hard on all things related to Pink Impact, especially writing all the pre event copy. For those of you who might not know one of my primary responsibilites in the womens department at Gateway Church is our annual women's conference called Pink Impact. This is my 4th conference to be involved with and it takes a large portion of my work time. I've been trying to get all the promotional oieces done. By the time I finished all that, I had a hard time switching to this format. Didn't mean to be absent for so long.

I've had a good two weeks. I am experiencing some side effects that are related to the steroids and chemo that effect your hormones. Hot flashes are a regular occurence and this week my ankles are swelling. These things make me grumpy! Who wants toi be fat and sweaty? Seriously, these are minor and I am continuing to be strong.

I had a surgery consult this week. It will be awhile before we have to make some decisions in this area. Not one of my favorite topics.

Tomorrow I receive my monthly dose of bone strengthener along with a new drug designed to prevent my blood vessels from feeding the tumor. Hoping for no side effects and a quick office visit.

My mom in law, Molly gave me Joshua 1 9 this week. Just a reminder to hold back fear and stay the course.

Please continue to pray for my body and soul. I have to keep resetting my mind and will to focus on what is good and pure and right. Believing my emotions will follow suit.

Thanks for hanging with me during a dry couple of weeks. I'm remaining steadfast and faithful.

Thanking God for every single warrior! You are appreciated.

Love,

Jan

Wednesday, August 12, 2009

Restless

Hi friends,



Thanks for all the sweet calls, texts and notes this week. I'm happy to report that I had a less difficult response to this round of chemo. I didn't get so tired until late Friday night and I could have been up and moving around the house on Monday - except on Monday morning Matthew woke with a sore throat and bad cough. I banished myself back to my room for the rest of the day just to be sure he didn't share his "stuff" with me. I did not get as fatigued this time, but I did develope a urinary tract infection and had to visit the minor emergency clinic on Sunday. I started an antibiotic and all is improving. I was able to return to work on Tuesday with very little trouble. All in all - the easiest round yet!



But I didn't manage myself so well. I was in bed all weekend, but couldn't really rest. I'd feel bad, toss and turn, go to get something to eat or drink, fall back in the bed. I got so tired of just wandering around the room, laying in the bed and clicking the remote. I was restless.



By the time Monday came around and I was forced into my room for another day, I became downright crabby. I really wanted to go lay on the couch! I was pretty much annoyed about any and everything. I'm sure that was nice for my sweet husband and sick children. I find my body did better, but my emotions were worse. I was whiny, cranky and not easily satisified. If I didn't know better, I'd say I was tired and send myself to bed again!



Selfishness is not a good bed partner!



Boston update: My mom in law, Molly, and sister-in-law, Julie, have been in Boston since Sunday evening. My mother in law has done amazingly well and been able to complete three full days of tests and procedures. She did qualify for the drug trial and Julie tells me they have medicene in hand. Although no new information was revealed, they did receive excellent counsel and some good direction for helping my mother in law to regain her weight and strength. They'll return in about 6 months for a follow up. They tell us that within a couple of months we'll be able to tell if she is receiving the real thing or a placebo. Apparently they are confident she'll be able to tell by some improvements in her current symptoms. They travel home in the morning. I'm so proud of them both - real troopers! Thank you for praying for them.



I see my doctor tomorrow for my one week check up! I'll let you know how it goes. In the meantime, praying for the strength, patience and positive attitude to conquer the next two weeks. Football, school, home improvements and doctor visits make for a crazy schedule. I bet you can identify.



Love,

Jan